newbie

Subject: newbie Tue Jan 15, 2008 6:22 am

hi there im tanya im 25 yrs olf and i have a 5 yr old son ho has hirschprungs' disease(bowel disorder) chromosomal deltion 1p32 something too long for me to remember and develeopmental delay

now with his chromosomal deletion its really rare they have no info on it what so ever so we take each day as it come. he is a very active child ppl might think he has adhd but doesnt hes on the go from when he wakes up til he goe to sleep. not talking or fully toliet trained yet but does do some signs and words which helps. he had bilateral talepies at birth but is now fixed by proper shoes after wearing splits for 2.5yrs.

the hirschprungs' disease he had 3 operations to correct this. 1st 1 he gottoo cold on the operating table so they marked the bad bit of bowel out and gave him a colostomy bag. 2nd operation was to removed bad bit of bowel and join bowel back together.3rd was to remove colostomy bag. he got a fever the week we arrived in sydney and ended up staying another week cos had to wait until his fever went away and then all the operations could happen.

sorry for the long stor but thought i would get it all out while im thinking at this time of night

Subject: Re: newbie Tue Jan 15, 2008 6:31 am

Hi Tanya
welcome along to osk if there is anything i can do just ask.
Its so tiring isnt it looking after special needs kids.
I will look into chromosomal deltion 1p32 and see if there is any other information for you

Deb x

Subject: Re: newbie Wed Jan 16, 2008 4:27 am

nah weve done that when he was born and we couldnt find ne thing about
but thank u ne ways Very Happy

Subject: reply to tanya Wed Jan 16, 2008 4:37 am

I know what you mean tanya sorry couldnt be more help

Does he go to a school yet?

Deb

Subject: Re: newbie Wed Jan 16, 2008 6:04 am

Very big welcome tanya hope we can be of some support for you

Chelsea x

Subject: Re: newbie Wed Jan 16, 2008 2:36 pm

yeah he goes to kindy and goes 5 days a week gives me more time for myself

Subject: Re: newbie Wed Jan 16, 2008 4:50 pm

You need time to yourself dont you
i see you are having a baby when are you due

Deb x

Subject: Re: newbie Thu Jan 17, 2008 6:21 pm

17th july im only 3 months but feel like 4 atm

Subject: Re: newbie Thu Jan 17, 2008 11:04 pm

Hiya and welcome

Subject: Re: newbie Fri Mar 28, 2008 5:53 am

**tanya** wrote:: 17th july im only 3 months but feel like 4 atm

Hi Tanya, how is the pregnancy going? You have quite a way to go, but it will fly by I'm sure!