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"I realize that advocacy does not come naturally for many parents, but
once they become the parent of a child with a disability they are often thrown into a confusing world of less-than-adequate services and fragmented funding. They find themselves thrust into the role of advocate for their child. The power of their collective voice is what makes change
happen. In the end, it is the only thing that does
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Special needs
ASSIST-IT: Downloads and Links
A vast selection of links and software designed to help learners with special educational needs get more out of using computers. Includes large pointers, screen magnifying glasses, a clickable keyboard and text-to-speech. The British Dyslexia Association
The BDA is the national organisation for dyslexia in England, Wales and Northern Ireland. This site contains a database of 130 Local Dyslexia Associations and Dyslexia Support Groups, a definition of dyslexia, advice on recognising the signs, information for parents and educators and an email helpline. Direct.gov: Special educational needs
Comprehensive information from the government's online portal on how to register and get help for children with special educational needs, and what school's responsibilities are. Dyslexia Action
An informative site containing a factfile, FAQ section, helpful hints, quick links, articles links and psychological assessment materials that can be purchased through the DI. Dyslexic.com
A wealth of software which is particularly suitable for use with dyslexic children (and adults) is reviewed on this site which is easy to navigate, carefully designed, and worth looking at before making a purchase. Equals
Equals is a national organisation for teachers of pupils with severe learning difficulties. The site features links to workshops and details of upcoming conferences, as well as an online discussion forum. Inclusion
The government's catalogue of resources for special educational needs. Meldreth Manor
Meldreth Manor divides into three separate sections; a text-based section which introduces the school and its ethos and contains information on teaching and the its use of ITC; a multimedia section, which is similar but uses plug-ins and downloads such as Shockwave; and the switch accessible site, which is designed for those with language impairment and/or visual difficulties. National Association for Special Educational Needs
Nasen is a huge nationwide organisation dedicated to promoting equal opportunities for learners of all abilities. The homepages contain press releases, journal contributions, its research database and and list of the association's individual departments. National Parent Partnership Network
The National Parent Partnership Network (NPPN) supports all parent partnership services across England. Resources for people with Learning Disabilities
Contains resources and links for the learning disabilities community. Features include games, books, tools for people with writing problems, personal essays, and assistance for college students. There is also information about making the best use of software, and LD organisations. SENTeacher.org
Free resources for special needs teachers, including printed worksheets, software and more links to other materials on the web. Special Educational Needs and Disability Tribunal: Responsible bodies
Information of interest to LEAs and other regular users of the tribunal, including schools responding to claims of disability discrimination. 
 Disabilty
 The definition of disability
Help and support
The role of schools
 Children in care
Advice for parents, foster parents and residential carers
Education in public care
Children with medical needs
Access to education
Advice about support
Special educational needs (SEN)
The legal definition of SEN
School transport policy
Homework for children with special educational needs
Special educational needs complaints
Growing up, sex and the disabled teenager
Information and support from UK charity Contact a Family
Booklets for young people, parents and teachers Support group details
Links to the websites of special needs-related organisations
Contact details for special needs-related My Guestbook |
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| One Term, Many Definitions: "Special Needs" is an umbrella underneath which a staggering array of diagnoses can be wedged. Children with special needs may have mild learning disabilities or profound mental retardation; food allergies or terminal illness; developmental delays that catch up quickly or remain entrenched; occasional panic attacks or serious psychiatric problems. The designation is useful for getting needed services, setting appropriate goals, and gaining understanding for a child and stressed family.
Minuses and Pluses: "Special needs" are commonly defined by what a child can't do -- by milestones unmet, foods banned, activities avoided, experiences denied. These minuses hit families hard, and may make "special needs" seem like a tragic designation. Some parents will always mourn their child's lost potential, and many conditions become more troubling with time. Other families may find that their child's challenges make triumphs sweeter, and that weaknesses are often accompanied by amazing strengths.
Different Concerns: Pick any two families of children with special needs, and they may seem to have little in common. A family dealing with developmental delays will have different concerns than one dealing with chronic illness, which will have different concerns than one dealing with mental illness or learning problems or behavioral challenges. This Parenting Special Needs site devotes sections to the following specific issues: medical, behavioral, developmental, learning, and mental health.
Behavior Issues: Children with behavior issues don't respond to traditional discipline. With diagnoses like ADHD, Fetal Alcohol Spectrum Disorder, Dysfunction of Sensory Integration, and Tourette Syndrome, they require specialized strategies that are tailored to their specific abilities and disabilities. If those strategies are not developed and used, kids with behavior issues throw their families into chaos and are seriously at risk for school problems. Their parents need to be flexible and creative.
Developmental Issues: Developmental disabilities are some of the most devestating for a family to deal with, changing visions of the future and providing immediate difficulties in caring for and educating a child. Diagnoses like autism, Down syndrome and mental retardation often cause children to be removed from the mainstream, and parents must be fierce advocates to make sure their children receive the services, therapy, schooling, and inclusion they need and deserve.
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| Medication |  Sun Dec 16, 2007 3:49 am by *mikaylas_mummy* | For those with children of ADHD what type of medication are they on?
| | Comments: 4 |
| Need some advice | | Thu Mar 13, 2008 5:09 am by Joanna | Yesterday riley went to see his physio with his arm and his legs and feet i told her he was still tip-toeing even though he has been wearing special boots to hold his feet down now for 3 months ive been concerend with his walking as half the time he walks like hes drunk and hes forever tripping over himself anyways my sister was with me and took it upon herself to mention that she thinks riley …
[ Full reading ] | | Comments: 2 |
| ADHD | | Sun Feb 01, 2009 12:57 pm by Debbie Lou | ADHD
What is it?
Attention deficit hyperactivity disorder (ADHD) is the most common childhood-onset behavioural disorder.
Those affected have a greatly reduced ability to maintain attention without being distracted, to control what they're doing or saying (because of impulsivity) and to control the amount of physical activity appropriate to the situation (that is, they're restless and …
[ Full reading ] | | Comments: 0 |
| autism.westmidlands provides specialist services to people with autistic spectrum disorders and their families within the West Midlands region. |
| Barnardo's works with vulnerable children and young people in the UK |
| The British Association for Early Childhood Education, founded in 1923, is known as Early Education. It is the leading national voluntary organisation for early years practitioners and parents with members and branches in England, Northern Ireland, Scotland, and Wales. |
| The BDA is the voice of dyslexic people. Our vision is that of a dyslexia friendly society that enables dyslexic people to reach their potential. |
| Becta is the Government's key partner in the strategic development and delivery of its information and communications technology (ICT) and e-learning strategy for the schools and the learning and skills sectors. |
| BILD is committed to improving the quality of life for the 1.2 million people in the UK with a learning disability. |
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| Siblings of Kids with Special Needs How does growing up in an exceptional family affect siblings of kids with special health or developmental needs? Siblings of children with special needs have special needs themselves. Their sister or brother with special needs will get a bigger share of attention. While having a special needs sib presents challenges, it also comes with opportunities. When parents tune in to each child’s individual needs, they can help ease the difficulties. What are some parenting tips for our family? You can help your kids better understand what having a sibling with special needs means to your family, and you can also help your kids figure out constructive and appropriate ways to express their feelings and get their needs met. |
| The Echoes Foundation Are you or do you know a parent / carer of a special / additional needs child?
Do you want to talk to somebody who is going through or been through the same experience?
Do you want a talk to somebody who can empathise, understand and know what its like? Do you live in the Hull area then get in touch with The Echoes Foundation | | 1st Floor 728-730 Hessle Road, | | Hull, | | East Yorkshire | | HU4 6JA |
 | 01482 505589 |
http://www.echoesfoundation.co.uk 
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| | related organisations and charities ACT
The only UK organisation working to improve care and services for all children in the UK with life threatening or terminal conditions and their families. www.act.org.uk ASBAH
A national organisation providing information and advice about spina bifida and hydrocephalus to individuals, families and carers. www.asbah.org.uk All Go Here
A directory of UK hotels and other hospitality related services which are disability friendly. www.allgohere.com Children Today
Provides grants for vital life changing equipment for children and young people with sickness or disabilities across the UK. www.children-today.org.uk Climb
A national organisation working on behalf of children, young people and families affected by metabolic disease. www.climb.org.uk  http://health.pppst.com/IEP.html
Parenting Journals - Promoting happy and healthy families. Tips, articles and resources for parents and children. |
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