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 welcome kylas mummy

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Debbie Lou
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PostSubject: welcome kylas mummy   Mon Mar 03, 2008 3:41 am

Big welcome to kylas mummy give us a shout if you need anything

Deb x
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Kylasmummy
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PostSubject: hiya new here   Mon Mar 03, 2008 4:01 am

hiya all.

im Jackie mummy to Kyla

Kyla was born at 30+4 weeks weighing 2lb 12 1/2 oz
Kyla is now 14 months old and has a significant amount of brain damage, Kyla is severely deaf and has 2 aids, i have just Recieved a diagnosis of Hypotonic Cerebral Palsey. Kyla is currently going through tests for Sight problems.
Kyla has sever global developmental delays and is only rollng over.
Kyla connot yet feed herself or even hold a bottle.
Kyla has very low muscle tone and has no posture or trunk control.
Kyla has severe weight problems and is undergoing tests to see if there is anything more wrong with her as she has the best appitite you could wish for. at 14 months old she only weighs 13lb 13oz.
Kyla also has a ho;e in her heart that dosent require surgery as of yet i have just recently found out that it is a PFO and searching it on the internet it dosent look that serious.

thanx all for your time and for listening

Jax n Kyla
xxx
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Debbie Lou
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 4:06 am

You are more than welcome Jackie have you any other children?

You will get support here

Deb
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Kylasmummy
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 4:25 am

hiya.

no i dont have any other children yet.
as im only 20 i find it very hard with just KYla and dont think that i want anymore. and the doctors have told me i might not be able to have anymore and im very lucky to have Kyla. i have an abnormally sheped womb i forget the name of it but my womb has 2 small cavitys and im very prone to misscaridges and very early babies. i had a terrible pregnancy as well and the docs just dont think my body would cope if i got pregnant again.

how many children have you got??

Kylas dad didnt stick around and moved away before she was born. he has only seen her once.
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Debbie Lou
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 4:40 am

You have had a hard time bless you
I have three children Chelsea 17 Pauly 10 and LennyJay who is 2
My friend Emma has the womb problem like you she always had prem labour and lost a baby.

Were abouts are you Jackie?

Deb
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Kylasmummy
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 4:58 am

hiya.
i carried twins but lost one very early one. she still grew though and i carried her all the way and she was borne just after Kyla.
this was caused by the condition that i had though i was called TRAPS (Twin Reversed Artierial Perfusion Sequance)(sorry for the spelling) it happens 1 in 35,000 pregnancies and ive been told because of my womb it could happen again.

im in the UK a place called Scunthorpe.

where are you?
has your mate managed to have a healthy child then with the womb shape. as i have known no different i dont no if its safe to try again.

Jax n Kyla.
xx
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Debbie Lou
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:01 am

Hiya Jackie

She has got 2 healthy children altho they came 2 months early.

Your not far from me im in Hull
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Kylasmummy
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:17 am

yeh im just over the bridge. kyla came 2 1/2 months early and had RDS the hospital think that might be the cause of the brain damage resulting in the CP she had alot of problems in NICU and had trouble keeping her oxygen levels right. the docs rekon her brain was oxygen starved when she was born.

im glad to hear that there both healty as 2 months is very early. how did she cope doing tat twice? was she expecting the second one to come early?. the only reason i found out i had the weird womb was because i started bleeding really heavy 4 weeks after Kyla was born. they thought i was hemoradging so scand my abdomen and told me then. they then said that there is a risk of me going through this all over again and i just dnt think i can take that chance to b honest.

do you think im being selfish when i say that as other peopke do.

Jax n Kyla

xx
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Debbie Lou
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:23 am

You are not being selfish at all you have gone through such a lot .

Its hard having one disabled child no wonder you feel like that .

Anytime you need to talk give us a shout do you have msn if you do give us your addy and il add you.

The others are nice on here aswell

Deb x
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Kylasmummy
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:25 am

yeh i got MSN but not really on it alot.

my addy is coulsey69@hotmail.com

thanx for listening ne way sometimes you just need someone to talk to.

Jax n Kyla

xx
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Debbie Lou
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:29 am

okay come back soon x
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Kylasmummy
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PostSubject: Re: welcome kylas mummy   Mon Mar 03, 2008 5:30 am

ok. thanx ill b back soon. ive saved the web adress in my favs

Jax n Kyla

XX
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SJeynes
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PostSubject: Re: welcome kylas mummy   Fri Mar 28, 2008 6:04 am

hello, we are all quite close then! I take Lewis to Hull to The Deep (we have season tickets) and I take Lewis to Normanby Country Park in Scunthorpe (we have season ticket for there too!).

Not much exciting to see in Doncaster I'm afraid!
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*mikaylas_mummy*
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PostSubject: Re: welcome kylas mummy   Tue Apr 08, 2008 10:13 pm

Hello and welcome
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