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 paulys story

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Debbie Lou
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PostSubject: paulys story   Mon Feb 25, 2008 10:19 am

When Paul was 2 years old, I knew there was something wrong with him you just do.

After endless visits to my GP and just being told I was being a bit too protective I was really down.

When he was 3, I started to notice these, as I called them then, funny episodes ,why I called them that I donít know there is nothing funny about them.

After repeated visits to A and E and being looked at like I was neurotic because he never had one in front of a doctor when I took him I was beginning to think I was losing it but my mum and husband had witnessed these.

Another visit later a student nurse witnessed him having one so it began the process which eventually led to his diagnosis of epilepsy complex partial seizures.

By then he was at nursery and straight away he stood out from the other kids, but the professionals said it was because of seizure activity in his brain but I didnít think it was only that.

By the time he started school my nightmares were only just beginning he struggled all the time .

They would ring me lots of times because he had ran out .

Then he was put on action plus, fat lot of good that did.

Then he was assessed by CAMHS (Child and Adolescent Mental Health Service) who diagnosed him with ADHD and said he would be ok in mainstream with a Teach Assistant .

They even offered for me to go on a parenting course even though I had a beautiful 12 year old well balanced daughter doing really well at school.

Things got really bad when I was pregnant with Lenny Jay now 2 .

Paul ran out of school every day and nobody would help me, my husband was away at sea .

I got a phone call from school to say Paul had gone missing.

I ran all the way to the school absolutely shaking and crying . Thank god we found him on the road, just standing in front of an oncoming van, the driver who thank god had seen him.

I removed him from school refusing to ever take him back there.

Since then he got a statement and a place in a school for kids with EBD.

I Still would not stop my fight to have him properly assessed so we went private.

They diagnosed him with Dyspraxia as well as ASD

Eventually he was seen buy a development Paediatrician and after only one appointment was properly diagnosed as being in the middle of the Autistic Spectrum without ADHD.

He was 8 years old.

So today we are having his statement reassessed and desperately trying to get him away from the EBD school at which he is often bullied by the violent kids.

We have been told there is a 2 year wait at the only school that can meet his needs in our area.

We have found an independent school which we are going to see in Dec when my husband comes home.

It is not too far but we have to secure the funding and the LEA have told me to go have a look but we probably wont get funding so thatís my next fight coming.

Deb x
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*mikaylas_mummy*
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PostSubject: Re: paulys story   Mon Feb 25, 2008 7:25 pm

I wish I could have a drink... but being pregnant, makes it very hard...

Glad you had such a good night Deb

TL, oh how I know what that is like, I used to drink like that when I was in my teen ages.... not very nice
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PostSubject: Re: paulys story   Mon Feb 25, 2008 7:27 pm

OMG sorry that was meant to go in a differant reply...
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PostSubject: Re: paulys story   Mon Feb 25, 2008 7:32 pm

Ok now for the proper reply.

What a struggle you have had with him so far. You know you would think that the doc's and specialists would be alot more willing to help you out and to listen.
And to think that they wanted you to get parenting classes Shocked what for...
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PostSubject: Re: paulys story   Tue Feb 26, 2008 7:57 am

hi
read paulys story last night. did not get a chance to reply.
will post more later.
it craps aint it. what we have endevour.
I had problems too.
i will tell you both later my life story. got do you really want to hear me go on.
sorry to be nosey deb. but read husband at sea. is he in the Royal Navy. or doing something else. EG oil rig, fisherman.
if he is in the forces. do you not have any charities linkled to mod that may help with Paulys funding
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PostSubject: Re: paulys story   Tue Feb 26, 2008 10:22 am

Hubby is a captain in the merchant navy T
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PostSubject: Re: paulys story   Tue Feb 26, 2008 10:53 am

hi Deb
There are no charities for children of the forces who can help then?

Cant hubby get a posting at Plymouth Naval Base here in Devon there are loads of special schools in Plymouth.
There are more in Plymouth that in the rest of Devon altogether
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PostSubject: Re: paulys story   Tue Feb 26, 2008 11:02 am

Sorry
just realised you said merchant Navy. IM A SILLY COW. BRAIN DEAD AS ALWAYS.
hOW LONG IS HUBBY AWAY FOR THEN.
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PostSubject: Re: paulys story   Tue Feb 26, 2008 11:06 am

lol T I think we are all brain dead he used to go away for 4 months now its 3 months
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