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 paulys story so far

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Debbie Lou

Number of posts : 218
Age : 49
Registration date : 2007-05-20

PostSubject: paulys story so far   Tue Apr 08, 2008 4:29 am

Just adding this back i must have deleted this by accident hope its not to small

When Paul was 2 years old, I knew there was something wrong with him you just do.
After endless visits to my GP and just being told I was being a bit too protective I was really down.
When he was 3, I started to notice these, as I called them then, funny episodes ,why I called them that I donít know there is nothing funny about them.
After repeated visits to A and E and being looked at like I was neurotic because he never had one in front of a doctor when I took him I was beginning to think I was losing it but my mum and husband had witnessed these.
Another visit later a student nurse witnessed him having one so it began the process which eventually led to his diagnosis of epilepsy complex partial seizures.
By then he was at nursery and straight away he stood out from the other kids, but the professionals said it was because of seizure activity in his brain but I didnít think it was only that.
By the time he started school my nightmares were only just beginning he struggled all the time .
They would ring me lots of times because he had ran out .
Then he was put on action plus, fat lot of good that did.
Then he was assessed by CAMHS (Child and Adolescent Mental Health Service) who diagnosed him with ADHD and said he would be ok in mainstream with a Teach Assistant .
They even offered for me to go on a parenting course even though I had a beautiful 12 year old well balanced daughter doing really well at school.
Things got really bad when I was pregnant with Lenny Jay now 2 .
Paul ran out of school every day and nobody would help me, my husband was away at sea .
I got a phone call from school to say Paul had gone missing.
I ran all the way to the school absolutely shaking and crying . Thank god we found him on the road, just standing in front of an oncoming van, the driver who thank god had seen him.
I removed him from school refusing to ever take him back there.
Since then he got a statement and a place in a school for kids with EBD.
I Still would not stop my fight to have him properly assessed so we went private.
They diagnosed him with Dyspraxia as well as ASD
Eventually he was seen buy a development Paediatrician and after only one appointment was properly diagnosed as being in the middle of the Autistic Spectrum without ADHD.
He was 8 years old.
So today we are having his statement reassessed and desperately trying to get him away from the EBD school at which he is often bullied by the violent kids.
We have been told there is a 2 year wait at the only school that can meet his needs in our area.
We have found an independent school which we are going to see in Dec when my husband comes home.
It is not too far but we have to secure the funding and the LEA have told me to go have a look but we probably wont get funding so thatís my next fight coming.

A little update

Seen 3 schools up to now the one we want is also full so we have to fight still
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