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post diagnosis Icon_minitimeFri Jun 05, 2009 12:33 pm by Debbie Lou

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weller23
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Number of posts : 19
Registration date : 2008-03-31

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PostSubject: post diagnosis   post diagnosis Icon_minitimeMon Mar 31, 2008 3:22 am

we got the dx of asd a year ago.i still have my ups and downs.my son is 4 and continues to make progress so i am thankful for that.i dont feel anyone really understands how i feel,not even family.getting the dx is like being hit over the head with a brick-you feel powerless to do anything and wish you could make it better for your child,whom you love more than you love yourself.
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Debbie Lou
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Debbie Lou

Number of posts : 218
Age : 50
Registration date : 2007-05-20

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PostSubject: Re: post diagnosis   post diagnosis Icon_minitimeMon Mar 31, 2008 4:11 am

Its hard isnt but we get through it dont we x
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weller23
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Number of posts : 19
Registration date : 2008-03-31

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PostSubject: i agree   post diagnosis Icon_minitimeMon Mar 31, 2008 8:23 am

yes you meet some great people when you have a child with s/n.we have been lucky too cos our paedediatrician-a lady-is a lovely person and my sons preschool have been very supportive.
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SJeynes
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SJeynes

Number of posts : 48
Age : 49
Localisation : South Yorkshire
Registration date : 2008-03-27

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PostSubject: Re: post diagnosis   post diagnosis Icon_minitimeTue Apr 01, 2008 4:26 am

weller23 wrote:
.i dont feel anyone really understands how i feel,not even family.getting the dx is like being hit over the head with a brick-you feel powerless to do anything and wish you could make it better for your child,whom you love more than you love yourself.

I totally agree with this, nobody understands, and your family who you would expect to be there for you til the ends of the earth, they just fall down around you in a heap (for me anyway) and its like 'for goodness sake, this is MY SON AND MY LIFE, and you want ME to SUPPORT YOU???!

As for the brick in the head, it was in the stomach for me. Like a huge WHOOMPH what just happened. Life is never the same again. And that (for us) is without a diagnosis, but for each time along our journey they have thrown a condition at us and said 'maybe' like neurological degenerative disease, and infantile battens.
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weller23
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Number of posts : 19
Registration date : 2008-03-31

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PostSubject: hi samantha   post diagnosis Icon_minitimeThu Apr 03, 2008 5:26 am

hi samantha i read your post and realised how lucky i am.it must be hard not to have a diagnosis.you put your trust in doctors but they dont always have the answers.i am sorry you dont have much support from family,that must be hard.
stellaxx
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weller23
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Number of posts : 19
Registration date : 2008-03-31

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PostSubject: hi samantha   post diagnosis Icon_minitimeThu Apr 03, 2008 5:44 am

hiya me again,just read your other post about preferring not to have a diagnosis.sorry didnt mean to put my foot in it.
stellaxx
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